We use cookies to ensure our site functions properly and to store limited information about your usage. You may give or withdraw consent at any time. To find out more, read our privacy policy and cookie policy.
Manage Cookies
A cookie is information stored on your computer by a website you visit. Cookies often store your settings for a website, such as your preferred language or location. This allows the site to present you with information customized to fit your needs. As per the GDPR law, companies need to get your explicit approval to collect your data. Some of these cookies are ‘strictly necessary’ to provide the basic functions of the website and can not be turned off, while others if present, have the option of being turned off. Learn more about our Privacy and Cookie policies. These can be managed also from our cookie policy page.
Strictly necessary cookies(always on):
Necessary for enabling core functionality. The website cannot function properly without these cookies. This cannot be turned off. e.g. Sign in, Language
Analytics cookies:
Analytical cookies help us to analyse user behaviour, mainly to see if the users are able to find and act on things that they are looking for. They allow us to recognise and count the number of visitors and to see how visitors move around our website when they are using it. Tools used: Google Analytics
Share Patients voice123_Rename on FacebookShare Patients voice123_Rename on TwitterShare Patients voice123_Rename on LinkedinEmail Patients voice123_Rename link
Supporting decision-making by parents when their child has relapsed neuroblastoma
Neuroblastoma is a rare type of cancer that mostly affects babies and young children. Parents must make many difficult decisions over months or years depending on how their child responds to neuroblastomatreatment. This can cause worry and distress.
Relapse neuroblastoma has many treatment options available but no standard treatment guidelines. This means parents are involved in making repeated treatment decisions depending on their child’s response to treatment.
The REDMAPP study aims to develop a decision aid to support parents when their child has relapsed neuroblastoma, by gaining a greater understanding of how parents make a series of repeated treatment-related decisions.
REDMAPP is an acronym for RElapse Decision MAking Parent Process.
Parents who are making these decisions can participate in the research by being interviewed about their decision-making experiences. These interviews aim to understand how parents make treatment related decisions and how their decision-making may change over time (if they have made more than one treatment decision).
This information will be used to develop a decision aid for parents. The decision aid will then be tested to see how helpful it is in supporting parents who are making repeated treatment decisions.
The REDMAPP Patient and Public Involvement Group
The REDMAPP study already has an established Patient Public Involvement Group which is advising researchers in this study. For more information please contact Helen Pearson helenpearson1@nhs.net - or visit:
The study is funded by National Institute for Health Research through a Clinical Doctoral Research Fellowship.
This project has also received a PPI grant from the NIHR Biomedical Research Centre at The Royal Marsden and the Institute of Cancer Research.
1 343434534adas
Supporting decision-making by parents when their child has relapsed neuroblastoma
Neuroblastoma is a rare type of cancer that mostly affects babies and young children. Parents must make many difficult decisions over months or years depending on how their child responds to neuroblastomatreatment. This can cause worry and distress.
Relapse neuroblastoma has many treatment options available but no standard treatment guidelines. This means parents are involved in making repeated treatment decisions depending on their child’s response to treatment.
The REDMAPP study aims to develop a decision aid to support parents when their child has relapsed neuroblastoma, by gaining a greater understanding of how parents make a series of repeated treatment-related decisions.
REDMAPP is an acronym for RElapse Decision MAking Parent Process.
Parents who are making these decisions can participate in the research by being interviewed about their decision-making experiences. These interviews aim to understand how parents make treatment related decisions and how their decision-making may change over time (if they have made more than one treatment decision).
This information will be used to develop a decision aid for parents. The decision aid will then be tested to see how helpful it is in supporting parents who are making repeated treatment decisions.
The REDMAPP Patient and Public Involvement Group
The REDMAPP study already has an established Patient Public Involvement Group which is advising researchers in this study. For more information please contact Helen Pearson helenpearson1@nhs.net - or visit:
